As many of you know, my mother, Ceil, was diagnosed in 1977 with ALS and passed away 7 months later at the young age of 63. It was the most helpless of all feelings that there was no research being done for ALS, no Foundation for ALS and there was nothing more known than when the disease was first diagnosed with Lou Gehrig back in 1939 when he was 36 years of age.
About the Walk to Defeat ALS
Tim & I are joining hundreds of walkers for The ALS Associations's Walk to Defeat ALS@, and we need your support to make our efforts really matter. ALS, also known as Lou Gehrig's Disease, is a deadly illness with no known cause or cure.
It affects the motor neurons in a person's brain and spinal cord. When the motor neurons die, the muscles waste away. Gradually, a person is robbed of the ability to walk, speak, eat, and eventually breathe. Upon diagnosis, doctors give ALS patients only two to five years to live.
THAT'S WHY WE WALK THE WALK - WE ARE WALKING FOR THOSE THAT CAN'T! Our efforts will help The ALS Association fund research to find the cause and cure of Lou Gehrig's Disease, as well as support services for people affected by it.
By making a one-time, tax-deductible donation, you can truly make a different in the fight against ALS. Just visit the online fundraising website to make your donation. Any amount you feel comfortable giving is deeply appreciated. Every dime makes a difference! With your support, we can make a positive impact today in the lives of those living with Lou Gehrig's Disease.
- Des Moines Walk to Defeat ALS - Saturday, October 6th, 2018 at Principal Park at 10 a.m.
- Since baseball legend Lou Gehrig was diagnosed in 1939, nearly 7 million people worldwide have heard the same devastating words, "you have ALS."
- The average life expectancy is approximately two to five years from diagnosis.
- While research has shed light on possible causes of ALS, there have been no definitive answers and its cure remains a mystery.
- Last year a new drug was introduced to help slow the progression which is the first drug in 20 years thanks to the ice bucket challenge and all the donations that came in to fund the research!
- In the advanced stages, ALS care can cost up to $250,000 a year.
We would love to have you come and join us by walking the walk with us in memory of those that have died and especially those that are now suffering from ALS!