Thank you for helping us reach our fundraising goal! Together we can make a difference in the lives of those affected by ALS. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatments and a cure.
Mike's illness is progressing. He uses his walker to get around in the house now and has an electric wheelchair to motor around the block. His folks live about 6 blocks away, so he can drive his chair over there and social distance with them outside. We are trying to avoid any exposure to covid, as it would be disastrous for Mike. But he continues to have an amazing attitude, which anchors our whole family. We traded his 2 wheel Harley Davidson in for a 6 wheel Harley chair. Any movement toward the chair and our little dog, Tiki, is begging to go for a ride with him. The two of them have become the talk of the neighborhood. So we press on day to day, savoring these last summer days as a family, creating wonderful memories. Covid has thrown such a wrench into everyone's lives. The biggest thing for us is that it robs us of companionship and fellowship with friends and neighbors. As we go into fall and winter it will be a much quieter time in our lives. But as a family we will remain grateful for all the days we have left together. We are lucky though because our daughter Katie and granddaughter Emma are here for the summer from Seattle and have been a great deal of help. Katie is able to work her job from home, so they packed up to spend the summer with Mike and I. We bought a small 10 foot swimming pool to help occupy Emma, and found out that it brings Matt and his family and the rest of us together to cool off and grill on these summer weekends. It's made memories that we will all cherish. And we are so very grateful for the ALS association. Before Mike was fitted with his custom electric wheel chair, the ALS loaner closet brought him a loaner electric chair at no cost to us. They have been there every step of the way, offering support through zoom meetings with the ALS group in Des Moines, they brought us his walker and various tools to help him grasp things with his hands as they are leaving him. This walk means so much to us. A time to give back for all of the effort and support that the ALS association does for all of us ALS families. Because it is a family illness and they are there to take care of us all. Funny story, as I ramble on ... When Mike had his new custom wheel chair, he took it on a ride about a mile away. He noticed on the way back that it was starting to wobble. He discovered one of the main wheels was loose. He did make it home and the wheel was almost off. We called the ALS people and a gentleman from Lincoln brought him a loaner chair the very next day. Another gentleman came from Lincoln to fix the wheel and he was astonished, saying he had never run into this before. But the point of the story is, they dropped everything for us and came to remedy the situation all the way from Lincoln, NE.
Thanks to each and everyone of you for your love and support throughout our journey.